• Posted by toujan on July 15, 2022 at 6:57 am
    Hi everyone. After both my kids got diagnosed with IBD I became interested in all health matters to be able to take care of them, support and guide them. 

    My daughter with crohns is 16 now and is on medication. Her iron level is within the normal range. But the ferritin is low and the transferrin saturation is low. I feel the food sources alone are not helping to maintain the levels. 

    Advice is appreciated! Thanks 

    Bernadette replied 1 year, 11 months ago 2 Members · 15 Replies
  • 15 Replies
  • Bernadette

    Member
    July 15, 2022 at 4:25 pm

    Hi  – as mentioned in the Gut Health Masterclass, iron is absorbed thanks to having good strong stomach acid in the stomach, which allows it to be better absorbed in the duodenum (first part of the small intestine). Given that your daughter has IBD, this will further compromise absorption (iron is already difficult to absorb), therefore your focus should be on supporting absorption with sufficient gut healing therapies (and removing any offenders contributing to inflammation like food sensitivities, gut overgrowths, etc), in addition to ensuring she has optimal stomach acid production. I share all of these in detail in the Gut Health Masterclass if you haven’t already watched it.

    As for iron-rich foods, I would highly recommend you try introducing organic liver into their diets. You can make a buttery liver pate (I will make a note to add the recipe in Resources for you), hide it in beef/hamburgers in a ratio of 3:1 ground beef to liver, or dice them small and freeze them so they can swallow them like supplements with meals.

    Also, have you read the book “Breaking the Vicious Cycle: Intestinal Health Through Diet” by Elaine Gottschall? It’s a great starting point for dietary guidance for those with Chrohn’s, ulcerative colitis, diverticulitis, celiac disease, cystic fibrosis, and chronic diarrhea. 

    Hope this helps give you some better guidance and direction on how to handle the low iron levels.

  • toujan

    Member
    July 15, 2022 at 6:33 pm

    Thank you! And yes haven’t gotten the chance yet to check out the gut health masterclass but will do first before asking any more questions 🙂 As for the book- actually she was on the SCD for a nearly a year when she was first diagnosed but it wasn’t very sustainable for her… her emotional well being was also a factor to consider.  

    And will give the liver a go 🙂 thanks again!  

  • Bernadette

    Member
    July 16, 2022 at 12:31 am

     don’t feel shy to ask your questions. Happy to help!

  • toujan

    Member
    July 18, 2022 at 8:18 am

    So been going through the gut modules, which are amazing! Love the way you break it down and explain things, and I have just finished the dysfunctions modules- what i know so far:
    • she has Hypochlorhydria for sure- so many reasons for me to confirm! And yes anytime i discussed reflux and GERD to Dr…. his solution was nexium (which i am not a fan of) 
    • need to consider testing for thyroid and h. pylori 

    I always knew other stuff are happening in there even though her calprotectin is maintained through medication, currently at 15. So lets see…. 

     

  • Bernadette

    Member
    July 18, 2022 at 6:21 pm

     Bingo – glad to see you’re on the right track. Let me know if you need help getting access to a functional stool test or H Pylori only stool test. I was hoping to have the web shop setup by now, but the lab is still working on things. I want you all to be able to access and order your own functional tests. It’s in the works… for now, let me know if I can assist.

    And when you order the thyroid panel, make sure it’s complete:
    TSH, Total T4, Total T3, Free T4, Free T3, reverse T3, anti-TPO, anti-TG

  • toujan

    Member
    July 19, 2022 at 4:37 pm

     thanks! I am in and out of Dubai till August 10 so Im not sure when to schedule but yes will appreciate direction on where to get the lab work done. So far just been doing the routine labwork through the Dr. at the hospital. 

  • Bernadette

    Member
    July 19, 2022 at 9:24 pm

     please email support@bernadetteabraham.com with the client/patient’s name, email address, phone number, shipping/billing address (if different) and we’ll send you a requisition so you can order the H Pylori or full GI Map (let us know your preference). The kit will get shipped and collected from you.

    As for testing the full thyroid panel, you can make an appointment with Dr. Liliana Skorski at HealthBay Polyclinic (Al Wasl road). If insurance won’t cover or if you prefer to pay out of pocket and not bother with a doctor’s visit, we can also arrange for a lab to come to your house. Let us know in the email what you prefer.

  • Bernadette

    Member
    November 27, 2022 at 3:20 am

    Hi  – I just wanted to check-in to see how you and your daughter are doing. Any recent labs you’d like to share?

  • toujan

    Member
    November 27, 2022 at 6:13 am

    Hi – thanks for checking in. During the summer she did see the Dr. and she did some tests for her: 
    thyroid- all good no issues thankfully 
    but her hormones were little off- progesterone (ECLIA) was 0.8 
                                                             prolactin (ECLIA) 20.1 
                                                             testosterone (ECLIA) 0.67 
    She was given some supplements accordingly Evening primrose, ovacure, premEeze. Some were too harsh on her gut and bothered her. 

    As for her ferritin – 8 and iron in blood 22. So Dr. arranged for her an iron infusion. 

    Unfortunately last week we found out that she is no longer in remission with her crohns and her inflammation is up. She was on medication but her body was creating antibodies against it. Calprotectin is up- I did ask for h.phylori but waiting for result too. She had a colonoscopy and endoscopy done and ulcers are back. 

    So from summer till now it’s been busy. She just started her DP1 in school and I think her stress is not helping. She is not willing to go back to her SCD way of living either. 

    Thats our update. Thanks! 

  • Bernadette

    Member
    November 28, 2022 at 11:03 am

     what are you giving her to help calm the gut inflammation? Any digestive support supplements too?

    And would you mind uploading her thyroid results so we can have a look from a functional lens?

    Regarding her diet, what is she willing to eliminate? Is she willing to eliminate dairy and gluten as a minimum?

    I’m not sure if you’ve seen the thyroid course yet, but I encourage you to watch the video on autoimmune disease facts when you get a chance to help give you a broader perspective on autoimmune disease and possible triggers to remove.

  • toujan

    Member
    November 30, 2022 at 5:48 am

    Thanks for your response. I am only giving her the DigestGold from Enzymedica and sage tea. Honestly didn’t know what else to give.

    Unfortunately still didn’t go through the thyroid course properly but will do especially that both of my siblings have thyroid issues too. So will get to that- just had a lot going on. 

    For her diet- have to say previously she was better. I do not use refined sugar – use coconut sugar or honey. Only use olive oil or coconut oil at home. Use only Tamari or coconut aminos. Gluten at home I only offer her sourdough bread. But of course when she goes out or we order in that is the problem. For diary she avoids milk, cream, yoghurt- and only does the cheeses that the SCD previously approved. She knows her body doesn’t really like dairy. But you know for a teenager when the actual tests don’t show that they are glucose/lactose tolerant it is hard for them to comprehend why they need to stop having all those things. 

    Attached are her results. When we do more tests we find out that there is more to deal with… like her hormones issue too. Keeps piling up. I just have been in circles for years. Thank you. 
    [IMG_1.jpg][IMG_2.jpg][IMG_3.jpg][IMG_4.jpg][IMG_5.jpg][IMG_6.jpg][IMG_7.jpg]

  • toujan

    Member
    December 4, 2022 at 12:33 pm

    Hi 🙂 Not sure if you got to see my response -any feedback?

  • Bernadette

    Member
    December 5, 2022 at 9:54 am

    Hi  – I could have sworn that I replied to you before. Did you get a chance to watch the video on autoimmune disease facts that I posted above?

    If she needs to be convinced to remove gluten and dairy from her diet as a minimum, I would recommend a food sensitivity test. A lactose/glucose intolerance is different to an IgG immune reaction which can be a delayed response and not always evident with symptoms. Here is a handout you can share with your daughter about the various hidden symptoms of a food sensitivity. 99% of my clients will test positive for gluten/dairy sensitivities, especially those with an autoimmune condition, which is why it’s easiest to just eliminate it and save money. But it can be powerful for those who need convincing.

    Even though sourdough bread has less gluten, with an autoimmune dynamic, especially one that resides in the gut, it really needs to be 100% removal for a period of at least 4-6 months while working on addressing the root causes and healing the gut lining.

    I would also disagree about the interpretation of her thyroid results. Her TSH, although it is within the normal clinical range, is in fact suboptimally high, which means her brain is sensing a greater need for T4. Unfortunately, total T4 wasn’t measured, but her Free T4 is also a bit lower. I like to see free thyroid numbers in the upper half of the reference range, especially if clients are symptomatic. 

    Her free T3 is also suboptimally low. I encourage you to watch these 2 videos on what can create low T4 and low T3:
    • Reasons for low T4
    • Reasons for low T3

    It would also be great to see her Reverse T3, which I know isn’t commonly measured, but does provide a better understanding of her thyroid function. Here’s what functional medicine considers to be a full thyroid panel. The good news is that her thyroid antibodies are low.

    With a sluggish thyroid however, this will for sure compromise digestive function, immune function, energy, etc. So back to basics first; we have to ensure she’s brining on board all the nutrients that support thyroid health.

    Here’s a video on foods for thyroid health, and another one on supplements to support thyroid health.

    Both digestion & thyroid should be supported at the same time, because they can create a vicious cycle. You need good digestive function to absorb the nutrients needed for thyroid health (iron being one of them), and you need good thyroid function, to support digestion. So supporting both is a good strategy.

    I also noticed that her Eosinophils are suboptimally elevated (4.6%). This can often indicate intestinal parasites and/or food & environmental allergies/sensitivities. Or asthma. Does she have asthma?

    When in her cycle were these tests drawn? That will make a difference in the interpretation of her results.

    Please make the time to watch all of the videos and handouts I’ve shared, and let me know your thoughts on the factors you feel might be at play with thyroid.

  • toujan

    Member
    December 5, 2022 at 3:20 pm

    Thanks for your response- But yes I felt there was some technology glitch. This is alot to take in – i think will need a couple of days to look at everything and make notes. Cause so far we are looking at crohns, hormone imbalances and thyroid. That is a tough list. 

    In regards to her cycle – sample was collected a day before her period. 
    As for the asthma- no nothing apparent. 
    I did actually ask then for all the thyroid panel tests and did mention that I am willing to pay if the insurance doesn’t cover. But they only ended up with the above. But I don’t mind doing any other necessary tests. 

    Bernadette truly thanks. Your support is greatly appreciated. You are helping me help my daughter heal and that is priceless! 

  • Bernadette

    Member
    December 7, 2022 at 10:36 am

     take your time to review what I’ve shared and let me know if you have any questions. I know it’s a lot to assimilate, but focus your attention on gut health, thyroid health, and removing anything that is taxing her immune system. I wouldn’t worry about her hormones – the timing of the test makes the results irrelevant.

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