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New member
Hi, hope everyone is having a wonderful Thursday,,
Iam happy that I joined BBetter and hope this could be a guide and life changing experience,,I dont know from where to start , Iam a lung and lymph Sarcoidosis and I have nerusarcoidosis reach to my brain and central nurve system,
I tried to follow to many nutrition protocols avoiding to be engaged with medicines but unfortunatly that didnt work,,
Now it is not limited to Sarc medicines (Methotrexate, Hydroxycloroquine and Steroid) but Iam on hypertension medicines and high cholestrol medicine and other supplements, and now Iam fighting not to have more medicines as long these are not improving my situation,
There is alot to talk about but this is where Iam frustrated and look for a help !!
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2 Replies
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Hey ,
First of all, welcome to this platform! My name is Daniel and I’m helping Bernadette answer questions on the platform.
First of all, I’m sorry to hear about your condition. It sounds like a lot! This platform has a lot of content. If you like I can help you a bit on your way! Advises usually gets better when we know a bit more about you. If like to share a bit more feel free! Things that could help us are for example:
• What type of symptoms do you experience? And think broadly! Do you have diarrhea, constipation, gas or do you feel bloated? How are your energy levels? Do you feel fatigued? And if so, do you feel more fatigued after dinner? How is your sleep? Do you wake up well-rested?
• Do you use your medications daily? And if so, for how long have you been taking them? Some medications could also cause some gut symptoms and nutrient deficiencies with long-term use.
• What type of dietary strategies did you try? And did some of them give some relief?With auto-immune disease in general we see often periods in which symptoms ‘flare up’. You are probably already familiar with this! Often flares get less with getting your serum vitamin D levels in the right zone. Was your vitamin D ever measured? And if so, what were they measured at?
The gut health master class is an interesting course to follow for you. With autoimmune diseases, we also see often that gut function has been altered. Bringing balance is probably part of your healing journey as well!
Hypertension and high cholesterol can be signs of many things. Insulin resistance is one of them. Perhaps you can also watch this video and this one as well from the blood sugar regulation course. This video explains what type of symptoms you could experience as a result of this. If you recognize any of them, let us know and we can advise you further!
There is also an option to upload labs when you like. I and Bernadette will take a look at them and could find some other clues to what fits in your healing journey.
Stress hormones usually play also an important role in autoimmune diseases. Stress could be caused by emotional stress. But many other lifestyle factors can influence stress hormones as well, like: pain, sleep problems, infections, steroids and many other things.
This message was just meant to welcome you here, but if you like some guidance, let me know!
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Hello Hussain,
I’m really glad you’re here. Members who use the forum to ask questions benefit the most, so don’t feel shy to ask! We’re happy to guide you and hopefully help you reverse the autoimmune dynamic that you’re wrestling with.
I would love for you to start another post in the “Ask Your Questions” space answering the questions and prompts from Daniel’s reply to help us get to know you and your case better. As he said, you can also attach labs, as it helps paint the overall picture together with your symptoms. I would say, make sure to list your top 5 symptoms for us. And if you could wave a magic wand, what would you wish could be different in your life.
Also, if privacy is a concern for you, you can always change your profile name to an alias and remove any identifying information on labs. Here’s a tutorial video to help you do that.
And since this is just an introductory post, I would love to introduce you to the world of functional medicine and help you frame your thinking with what to expect from B Better. Please start by watching this 5-minute video from the Gut Health Masterclass course to understand the difference between conventional medicine and functional medicine if you’re new to this approach.
I would also encourage you to then watch this 8-minute video on autoimmunity to better understand the perfect storm of events that happens in ALL autoimmune diseases, regardless of the diagnosis.
Looking forward to helping you on your health journey. I’ll be on the lookout for your next post in the “Ask Your Questions” space.
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