[DXB]

Very helpful information!! Thanks so much Bernadette

[DXB]

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• This reply was modified 3 months, 3 weeks ago by  DXB.

[DXB]

Hi @Bernadette_Abraham while we are on the topic, I had just got our reverse osmosis water tested as well. The results we got, seem quite different though for some reason.

Also, our test result indicated the TDS is below the minimum requirement. Does this mean we are lacking some minerals in our drinking water?

That would be appreciated if you can share your overall view on our test results too.

Many thanks

• This reply was modified 4 months ago by  DXB.

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[DXB]

Thanks so much Bernadette 🙏🏼

[DXB]

Hi again @Bernadette_Abraham

So, my uncle has decided to give himself a month before any medical treatment at the hospital. He is feeling quite down, so he decided to give himself sometime to lift up his spirit again. In the meantime, do you think the following supplements are ok to give to him to support his recovery:

– B12 (In drop form for better absorption)

– Methyl folate

– Magnesium glycinate (Nighttime before sleep)

– Inositol (Nighttime before sleep)

– Proflora – Soil based probiotics (Nighttime before sleep)

The gut and brain axis are so clear at the moment as I fear his stomach problems are leading to some sort of depression. Supplements to facilitate a deep resting sleep along with some good bacteria to support his gut are my initial thoughts. I was also thinking a good B complex as well, but thought less is probably better now for him.

Could you please let me know how you would feel about these supplements?

Thanks so much again for your help.

[DXB]

Hi @Bernadette_Abraham Hope all is well.

With regard to the below emails, there has been further investigations, and my uncles diagnose has been concluded as “amyloidosis’. The docs did biopsy from both bone and the kidney; the result indicated the same diagnosis for both biopsies.

We understand this disease could be primary or secondary. It could be genetic or a result of another underlying health issue.

The docs investigated comprehensively; however there hasn’t been any indication of it is being the secondary disease.

In the meantime, he rapidly lost a lot of weight, physical strength etc. He is unable to move or walk on his own, extremely weak and unable to eat as well as he has extreme nausea.

Having a look at some of the groups online who share their experience and treatments for Amyloidosis, they all have a long list of issues such as infections, weight loss, nausea, diarrhoea, constipation etc. which are similar to his symptoms. most patients have multiple myeloma with Amyloidosis; however his biopsy didn’t indicate that.

One of the main problems is the water retention. When he is on urine flushing tablets, it stripped off the electrolytes and then he started having issues with mental clarity etc. He was off the meds for a while, then the retention on his body and organs has come back on; particularly the retention on lungs is making it tough for him to breath. He is being admitted to the hospital again to get the medical support he needs, but the point is he is in this vicious cycle now.

Another issue is that he was also unable to tolerate the medication given for amyloidosis as it caused serious nausea and diarrhoea.

The list goes on and on unfortunately.

So my questions are:

– A nephrologist assisting him at the moment with medical support and treatment. But considering the high spread of the disease, do you think we should also consult with a haematologist? There are specialist hospitals for Amyloidosis from what I can see online; however, they are located in other cities and unfortunately, he cannot travel due to his extremely weak status.

– What would be the best treatment that can be considered for a patient in this status.

– What supplements we can consider easing of his symptoms and make the daily life easier for him.

– Any other natural remedies you can think of.

Thanks for your help.

Regards,

• This reply was modified 1 week ago by  DXB.

[DXB]

Totally agree Bernadette. Thanks so much again for your continuous support 🙏🏼

[DXB]

Hi Bernadette. These are great options.

We can actually benefit from both Berkey and Brita. I can leave the Berkey with relos in Australia and pick it up whenever we land in Australia every time. We stay at different houses so the filter option should be mobile and easy to carry around.

Brita is also a good option. It seems light and easy to use.

How does it compare in terms of quality of filtration between the two?

It will be only two of us using it; my husband and me.

Many thanks

[DXB]

Hi @Bernadette_Abraham Thanks so much for your kind words and extending your support. Much appreciated.

We had an early access to the report on the weekend; so I was able to share with you ahead of his visit to doctors.

As you can imagine, as soon as the doctors saw the report on Monday morning, my uncle ended up getting admitted to the hospital due to the criticality of his situation. He had an emergency consultation with a lung and heart specialist and underwent a series of tests including an echo as you had predicted. They concluded that there is heart failure; however, the reason for that needs further investigation.

The blood test on Monday also revealed he caught pneumonia; so the doctors were contemplating which intensive care unit he needs to be admitted to; respiratory or heart.

He is currently at the respiratory division getting treatment for both pneumonia and heart failure. The doctors have flushed his system with a medication through urine in response to extreme water retention in particular around his heart and lungs.

I have attached his latest blood test which shows various red flags. The other Xray report translation is as below. Thanks so much again for your help.

Technique: The scan was performed from the thoracic inlet to the diaphragm, using mediastinal and parenchymal windows, without contrast material, in axial slices of 1 mm thickness.

Findings:

• Trachea and mediastinum are midline.

• Heart appears normal in size.

• No pericardial effusion (no fluid around the heart).

• Major vascular structures: Aorta diameter is within normal limits.

• No pathological-sized lymphadenopathy (LAP) in the mediastinum.

• Lung parenchyma: right upper lobe, there are consolidated areas with air bronchograms, suggestive of alveolar filling (often seen in pneumonia).right lower lobe (basal medial segment) and left lower lobe (basal segments), there are areas of alveolar infiltration and atelectasis (partial lung collapse or reduced air content).

[DXB]

Hi @Bernadette_Abraham; I have managed to visit my uncle and convinced him to have the tomography. I am copying below the translation of the report. Unfortunately, there seems to be a long list of issues. His problems had started with having Covid a few months ago and he had really struggled at the time with his lungs and breathing. I can see in the report there are so many other medical issues, but do you think the water accumulation at lungs and heart are a result of covid?

That would be appreciated if you can share your overall view of the report. What would be the next step in your view? I have also attached the latest blood test, which is not so comprehensive though.

Many thanks.

Here’s the translation of the medical findings you provided:

1. *Bilateral widespread pleural effusion*: There is fluid accumulation in both lungs, which could be associated with conditions such as infection, heart failure, or malignancy.

2. *Subsegmental atelectatic changes in the lower lobe of the left lung*: There are signs of lung collapse due to airway obstruction in the lower lobe of the left lung.

3. *Air cysts in the anterior and middle segments of the lower lobe of the right lung*: There are air-filled cystic structures in specific areas of the right lung.

4. *Pericardial effusion*: Fluid accumulation around the heart.

5. *Widespread edema in the abdominal wall at the abdominopelvic level*: There is swelling in the abdominal wall, which could suggest fluid retention or other underlying conditions.

6. *Hepatomegaly*: Enlargement of the liver, which can be due to various causes such as liver disease or congestion.

7. *Cholelithiasis*: Presence of gallstones in the gallbladder.

8. *Hyperplastic changes in both adrenal glands*: There are changes in the adrenal glands that indicate an increase in cell number, which may need further evaluation.

9. *Small amount of urine in the bladder*: There was a small volume of urine observed in the bladder, and thickening of the bladder wall was noted medially and laterally. Correlation with a full bladder via sonography is recommended.

10. *Diffuse thickening of the wall and narrowing of the lumen in the sigmoid colon*: There are changes in the sigmoid colon that may suggest inflammatory or obstructive processes.

11. *Multiple diverticula in the sigmoid colon*: Presence of small pouches in the sigmoid colon, which can be associated with diverticulitis.

12. *Rare calcified atheromatous plaques in the abdominal aorta wall and iliac arteries*: There are a few calcified plaques in the arteries, indicating early atherosclerosis.

These findings suggest a range of potential health issues that may require further investigation and management. It’s crucial to consult a healthcare professional for a detailed assessment and appropriate treatment.

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[DXB]

Thanks Bernadette. Will check this out 👍

[DXB]

Thanks Bernadette. Glad to hear that 🙂

[DXB]

Thanks Bernadette. Not quite familiar with the carbon system. But saw your message above to Amira regarding liquid of life. Could you please let us know all when their latest technology is available. Many thanks

[DXB]

Hi @Bernadette_Abraham . Unfortunately he has made an executive decision for himself that he would be at home finishing his antibiotics and resting only.

I missed before – you had asked whether he has any issues with digestion; he seems to be fine handling his food.

He says he is not in a state of mind to get into an MRI machine or do more investigations.

So after 1 month, he wants to do the gallbladder surgery only.

Our hands tied here unfortunately, all I can offer now is to support his system and recovery as much as possible.

He lost a lot of weight, still not strong. Hence I suggested the supplements above in the meantime. Hoping to visit him in a month and will try to influence him for more tests.

<font face=”inherit”>Could you please let me know your thoughts on the supplements, if you can. I know there is lack of</font><font face=”inherit”> information about his current health. </font>

Thanks again

[DXB]

Thanks so much Bernadette🙏🏼